Showing posts with label CIIN. Show all posts
Showing posts with label CIIN. Show all posts

Sunday, January 31, 2010

BRAIDING: a metaphor used again and again


Pete and I have spent the last couple of hours in comfortable companionship in the basement space that is our homespace away from the vardo.  "Nice morning," he said.  "Yes, a new normal ha?"  I said.  Pete continued reading the comics in the one slightly risky wooden chair that is part of our minally accomodating seating choices.  JOTS has not moved from the nest she finds most pleasant, a nest made from the organic cotton sheet that serves as lots of things in our life.  So far, JOTS nest is the most purposeful use thus far.  When we made the choice to build a tiny home on wheels we included the awareness of an extension cord life as essential; the vardo would not provide all the basic needs.  In less than a year we have lived in three different communities/with three different families-friends.  We have learned through those experiences to value the progress we have made and to re-evaluate what else we need to add back into our lives now that the intense spin of a life fueled on adenalin is slowing down.  The metaphor of a braided or unbraided life is one I have used to explain the process, and the metaphor has found its way into the tales I've written:  Sam and Sally was the first, and Wood Crafting came during the year just passed.  Blogs have been the venue of braiding the different voices or views of our lives, and to that process I am grateful.  Written braids have served my healing journey over and over again.

Through the access of keyboards and internet I watch the changing look of information as websites, community networks and blogs change:  a reflection of the authors' evolution.  Self-publishing becomes an organic function that all comers get to experience.  In particular, I observe how The Canary Report and Planet Thrive evolved during the past two years and less.  Both sites focus on the community of MCS and EI (multiple chemical sensitivities and environmental illness).  Both authors live with MCS and each braids their individual personality and focus with different styles.  Each of those community networks has given me and hundreds (thousands more likely) of people with MCS the support, forum for voice, and resources to make informed decisions to aid in a healing journey that fits the unique need of the individual.  Many other resources for the environmentally affected population are now available, among them HEAL, MCS America and CIIN (Chemical Injury Information Network) have served over the longer period of time.  I include these three among the many because I have used the information found there in my own life. 

Thursday, November 13, 2008

Malama pono ... Take care of yourself

Moon Rise November

I am back from Dr. Buscher's office. The thirty minute drive from White Center to Redmond means I get on I-5, head east on H-520 and cross the watery expanse of Lake Washington. If given options I choose to avoid freeways. Weather and traffic conditions were good so I was at my 12:30 appointment just in time. Well, it would have been just in time if 12:30 was the right apointment time. Auwe (alas) I was actually an hour late. On any other day Dr. B would have been at lunch. Funny how the gremlins of time play with us humans, and one of the things that happens with MCS is, a defragmentation takes place and details float (to somewhere) after an exposure.


Yesterday's post triggered the post traumatic stress symptoms of reliving a life-threatening experience. The body-mind and spirit cannot distinguish between past threat and present. I suspected as I wrote yesterday that might happen, and it did. Thankfully I recognized the feelings of grief that come from these traumas, and called in my support team. My therapist is available to me by phone, our appointments for the past several months take place via cellphone. They are LIFESAVING. Without this kind and nurturing connection the grief of re-visited trauma would lie in wait and trip me up a good one when I am already vulnerable. There was no scheduled appointment yesterday, I just called. She was there, and had a minute. My conversation with "K" defused the sadness and switched on the light of care that is essential. "So, you are taking very good care of yourself today," is one thing "K" shared with me. I sat looking out at the roaring sea at Alkai Beach and let her assurances pat me on the back and empty some of the grief that is inevitable with MCS. **


Dr. David Buscher has the face of a character out of one of those endearing tales where neat and tidy hair never enters the page (if you're reading), or screen (if your're watching). I was surprised when I first set eyes on him, and chuckled inside when I saw him today. We haven't seen each other for more than a year. "Mokihana," he said rounding the corner of his office beyond, "I wondered whether you'd left Hawaii." Dr. B is the man who 'officially' diagnosed me with Multiple Chemical Sensitivities, said the illness would change my life. Today we caught up, in a brief yet essential session. My purpose for this appointment was to get the signature of a physician licensed in Washington to complete The Pesticides Registry document. I was an hour late and yet we were both in that office at 12:30. As I talked he scribbled on his blank sheet of paper, nodding and giving me that facial language that is inimitably Dr. B. I felt assured again that as much as possible I was caring for myself and playing this game with all the cards I held. "Thanks for stopping by today," he said after I get his signature and he updated my chart.

It's important to know I can take care of myself, and even more important for a Scorpio Sun/Capricorn Moon woman like myself, to know when to call in the reserves.



Malama pono ... take care of yourself.

**I have attached a link to CIIN (Chemical Injury Information Network's website. This resource was where I first found my therapist's ad for counseling that addresses the issues of grief and MCS. This non-profit group is an advocacy and education enterprise, staffed by people with MCS for people with MCS. You'll need to join/become a member, but a member simply means making a very reasonable yearly donation.